Dear Blog Friends,
I usually don't post about much more than knitting or my silly iPhone photos, but today I am going to ask a favor. It doesn't involve money, just a couple minutes of your time.
One of my best friends, Sarah, has a 2 year old daughter whose little friend, Gwendolyn, has a terminal illness, Spinal Muscular Atrophy (SMA). I didn't know anything about this disease until I learned about it from Sarah, but it is the number one genetic killer of infants and 1 in 40 people carry the gene. Children with SMA lack a protein in their DNA that keeps their motor neurons thriving; their minds are never affected, but they slowly become paralyzed and have to rely on machines to breathe and tubes to eat. Most children with SMA die before their 2nd birthdays. Luckily, researchers are quite close to a cure -- but they are low on funding.
Gwendolyn's parents have set up a foundation in her name and have worked tirelessly to raise both awareness of SMA and money towards the research that is close to finding a cure. The Gwendolyn Strong Foundation was recently voted one of the top 100 non-profits in the Chase Community Giving program and is now in 6th place in the running for a $1 million prize. This is money that could make a real difference.
Voting is done via Facebook and will be open for 6 more days -- if you have a moment and feel so inclined, please think about logging on and voting for the Gwendolyn Strong Foundation. You can get directly to their page on Facebook by navigating to www.voteforsma.com - once you've logged in, click on "Vote for Charity" to vote for them.
And for more information, see www.gwendolynstrong.com.
Thank you all so much for reading,